Clearly people with Type 1 diabetes who have had to work at managing their diabetes since diagnosis and have participated in a DAFNE course will bring a unique insight to DAFNE research. Encouraging patients’ participation in NHS R&D can improve both the quality and relevance of research. We will resource and develop the existing DAFNE User Group and DAFNE User Action Group to help contribute to all aspects of DAFNE research. To ensure that they participate effectively a 2-day specially designed training sessions will be provided.
We will assess the impact of user involvement to examine how effectively DAFNE user involvement benefits ongoing and developing DAFNE research. This will be facilitated through observation of research group meetings attended by user representatives followed by interviews with user representatives and researchers.
Commenced: June 2009
Completion date: September 2012
Update: Observation of DAFNE research group meetings involving DAFNE users, and interviews of user representatives and researchers are ongoing.
Results of the study are anticipated in Autumn 2012.
Last Updated: 23/04/2013